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Infants of Parents with Mental IIlness
Developmental, Clinical, Cultural, and Personal Perspectives

Edited by

Anne Sved Williams                                    Vicki Cowling           

During the last 100 years infant mortality rates have improved dramatically, yet even in a developed country such as Australia the physical health of infants varies greatly, despite advances in science and technology. It has now become clear that emotional and physical development is affected by many different variables. Not only must physical development and health support be adequate, but the presence of factors such as good-enough parenting, and the absence of others such as substance abuse and domestic violence, are now becoming better understood. So how best to work with families where infants are at risk? This is the substance of this book: to understand how to achieve improved outcomes for infants growing up in situations of risk, mainly in the area of the parents’s mental health, but also in other related psychosocial circumstances that may impair parental functioning. These include migration, substance abuse, and infant  hospitalisation. Throughout this book, the authors examine the effects of adverse life circumstances on infant and family and, in most cases, also describe  assessments and interventions. Several chapters have been written by people  personally affected by mental illness, or mental illness of a family member. This provides in-depth and often poignant understanding of the perspective of those living with the effects of such illnesses, and helps to expand our knowledge and skills to work with at-risk families.

About the Editors

Vicki Cowling, OAM, is an advocate for children of parents with a mental illness and their families, and has contributed to research, service development, professional education, and publications including editing two books concerning children of parents with mental illness (1999, 2004). Partnerships with consumers, carers and family members are integral to this work. Vicki is a member of the Reference Group for the National Children of Parents with a Mental Illness (COPMI) Initiative.

 

Dr Anne Sved Williams is the Director, Perinatal and Infant Mental Health Services, Children, Youth and Women’s Health Services, South Australia and Clinical Senior Lecturer in Psychiatry, University of Adelaide. Anne trained in family therapy at the Ackerman Institute in New York, and in psychiatry.  Her major work foci have included perinatal and infant psychiatry particularly as a trainer, general practitioner training and support systems in psychiatry.

REVIEW by Nick Kowalenko in Australasian Psychiatry, June 2009

Infants of Parents with a Mental Illness is a very good read. Its incorporation of the lived experience of family members, including grandparents, siblings, mothers and fathers, provides a bedrock that anchors the chapters written by a multi-disciplinary group of Australian health professionals. In also addressing clinical, developmental, cultural and personal perspectives, it overviews the field of infant mental health. This is not a textbook, and it is often descriptive in style and not rigorously analytic. I think of this book as a primer in what is still an emerging field, with a distinctly Australian flavour.

The first chapter provides a fine synthesis of the evidence base for the central role of attachment and the critical importance of the quality of the parent–infant relationship in optimizing child development. Chapter 2 presents a particularly moving account of a mother’s delight (as opposed to her treating professional’s horror) in becoming pregnant and the challenges that follow. For some reason, it still surprises me that a seasoned practioner like myself continues to be affected by such an account of powerlessness, fear, anguish and serious illness that is the lot of many of our clients and their families. Such stories say much about the strengths of families and the care we must take in our professional roles not to harm them. The following chapters on risk assessment and the impact of social welfare legislation in the context of child safety are well articulated. The sections on fathers and personal perspectives delineate the very broad impact parental mental illness can have on families, including siblings.
The two chapters addressing political and cultural factors are excellent and remind us of the ways in which those who govern us don’t necessarily keep the best interests of infants at heart.

Chapters 12–17 address interventions and perhaps this is the section of the book most devoted to psychiatric practice, informing our efforts as practitioner-scholars. The field is still too much in its infancy for the provision of recommendations for evidence based practice, but good practice is clearly delineated. The last two chapters elaborate the principles and practice for potentially effective interventions in childcare settings and the paediatric hospital, demonstrating that not all interventions should be limited to clinical settings.

The first two chapters set up the dynamic of the book, a dialogue between the scientific base of professional knowledge and lived experience. It’s clear that they come from different worlds, but the book succeeds in blending these disparate voices, and I found this quite sustaining.

There are a few quibbles: the section on assessment focuses on risk, and inadequately addresses the assessment of strengths, and the quality and scope of the chapters is inconsistent.

This publication can prime us, too, with knowledge, with clarifying professional priorities, with a map of the impact on infants of mental illness, and with support for policy directions. I can see the book doing all this. It is, therefore, a significant contribution to the field and a significant resource for those concerned with parental mental illness and its impact on infants.

REVIEW by Beth Macgregor in AAIMHI Newsletter March 2009

Groan. That's what I did when I remembered that I had agreed to review Infants of Parents with Mental Illness: Developmental, Clinical, Cultural and Personal Perspectives for this AAIMHI Newsletter. It had seemed like such a good idea when I volunteered last year. But now - at the end of summer, when the sky is blue, the weather is warm and the beach beckons - it seemed like a dumb thing to do.

Then I opened the book. And I couldn't put it down. While the title lead me to think I would find dry material, what I found was a book rich with insight, fascinating research, stories and thought-provoking material.

Broken into seven sections, Infants of Parents with Mental Illness examines the effects of a person's mental illness on their experience of being a parent, and on their infants' experience and development But it doesn't stop there - the book deeply examines the question of how best to assess the needs of these families, and how to work with them to improve outcomes for infants And while the bulk of the material does relate to families where parents have a mental illness, It also considers other related psychosocial circumstances that may impair parental functioning, such as drug and alcohol abuse, domestic violence, and trauma due to mandatory detention.

The book's seven sections are:

1. In the beginning, which examines the perinatal period, including anxiety and depression that can arise at this time

2. Assessing the situation, which considers how to assess attachment disorganisation, parents' protective capacity, and also provides a child protection perspective on high-risk infant assessments.

3 Fathers, which looks at the experiences of partners of mothers with a mental illness, and the importance of including fathers in the assessment and treatment process.

4. Personal perspectives, which tell the stories of the experiences of grandmothers of infants whose parents have a mental illness, mothers who have a mental illness, and adults who grew up with parents with a mental illness

5 Political and cultural influences, which examines the needs of Aboriginal children and their families, as well as children in refugee and asylum-seeking families.

6 Working with infants and their parents with specific disorders, including parents with schizophrenia, borderline personality disorder, parents who misuse drugs. and those in a mother-baby inpatient unit

7. Working with infants and their families in particular settings, including sick babies in a paediatric hospital setting. and working with infants and their parents with mental illness in childcare settings.

Each chapter is written by a different expert, and the authors come from a variety of disciplines and backgrounds, including psychiatry, social work, occupational therapy, psychotherapy, early childhood education, nursing, infant mental health and child protection. This rich array of contributors helps create a book with diverse appeal.

Almost all of the chapters pay attention to the issues of assessment and intervention, and make use of case studies to bring these topics to life. This intertwining of research and theory with detailed vignettes is one of the factors which make this book so absorbing.

It would be impossible in this short review to highlight the key ideas in this book, because each chapter has its own specific focus and the book covers such a wide range of topics. However. I can offer some bite-sized samples.

In Chapter 1, Increasing knowledge, increasing /lope for infants?, Anne Sved Williams provides a clear and succinct account of the basis of emotional health for infants, explaining how 'Those parents who can sensitively tune into their infants and better provide them with relief from stress will help those infants' brain growth and the associated external signs: more exploration, enhanced learning, calmer behaviour and better coping mechanisms when anxious' (p. 5).

In Chapter 4, More than a question of safety: Assessing attachment disorganisation and protective capacity in highrisk parent-infant dyads, Jennifer E Mcintosh addresses the question: 'Do we have a biological right to parent our own children?' She says 'It has taken the sobering force of neurobiological evidence to confirm the enduring neurological trauma done to a young child who is not permitted a responsive, intimate, protecting relationship with a caring adult This implies an imperative for preference of attachment above biology in the developmental health of the young child' (p. 49). She provides a powerful and coherent argument for 'legislative efforts to uphold the right of the child to early psychological security within an organised and continuous attachment relationship' (p. 61)

In Chapter 12, Children are our future. Understanding the needs of Aboriginal children and their families, Helen Milroy explains how understanding cultural frameworks can greatly assist better outcomes for Aboriginal families, and explains how the Aboriginal view of health is 'holistic and interconnected with mind. body, spirit and nature in balance' (p. 125). She also gives a fascinating account of Aboriginal Family Systems, and explains why 'From a clinical perspective, it is important to map the family's kinship system as this will establish the broader nature of attachment relationships and what roles others play in the family system' (p. 128).

In Chapter 13, Infants in refugee and asylum-seeker families, Sarah Mares and Rosalind Powrie explore the developmental risk and protective factors impacting on infants and young children in families who, as a result of forced migration, seek refuge or asylum in countries other than their own. They explain how 'culture influences the expression of distress and illness and the way it is explained, 'labelled' and treated. and the acceptability and efficacy of treatment' (p. 144). They suggest that questions such as 'What do you call the problem. why is it happening and what do you think caused it?' help to elicit an explanation of symptoms in a way which can help practitioners understand a client's mental health problem from within a cultural perspective. They also explain that, when doing assessments with refugee families, 'A skilful balance is needed to allow parents to tell their story. without retraumatising them, while focusing on issues relevant to parenting and their children' (p. 151). This chapter also gives a heart-wrenching account of the impact of Australia's detention policies on families and children.

Another factor which makes this book unique is the stories of people personally affected by mental illness, or the mental illness of a family member. The chapters written by these people provide a poignant, and at times painful, glimpse into the realities of being a parent with a mental illness. One mother, Nichole, wrote with brutal honesty about the effects of her illness on her children: 'From the time my eldest son was born, I slowly replaced his unconditional love with fear, sadness, anger and confusion ...The reality of my life soon became his life, complete with all of the obvious damage that I alone would cause in times of madness and confusion, which lead to the emotional abuse and neglect of my children. Today, I am still a witness to the devastating effects that my life and my illness has had on my children, and for all they have had to endure' (p. 110). While Nichole's journey ends on a positive note - 'I am proud of the person that I am now The wisdom and the insight that I have gained and experienced through my journey has given me the confidence to be able to help. sympathise and assist other people living with a mental illness' - she ends her chapter by sounding a cautionary note: 'let us never underestimate mental illness and the devastating effects that it can cause to our children when we are unwell' (p. 111).

The chapters written by people personally affected by mental illness also give a clear - and at times distressing - sense of what it can be like to be a client of mental health services and how individual case managers and services c. l make a profound difference - positive and negative - to clients' experience and outcomes. One mother, Amy, describes how flabbergasted she was when she excitedly informed her case manager of her pregnancy, only to be told that it was the case manager's 'duty of care' to book her in for a termination (which Amy refused) She also describes how unsettling it was during her pregnancy to feel that the health professionals around her doubted her ability to be a good mother.

Amy also describes how in the end - after suicide attempts and many hospital admissions - becoming a parent transformed her "I had always thought of myself as unworthy of being a mother to such a precious soul, but it dawned on me that day that if she had been entrusted into my care that I surely must be of some worth".

There is something for everyone in this book. While most obviously people working directly in the provision of mental health services to adults and/or children would find it a most worthwhile read, it would be of great interest to people from a wide variety of disciplines working with parents who have a mental illness and/or their children. For example those working in the fields of child protection, early intervention domestic violence, alcohol and other drugs and family support.

So while I did miss out on a few trips to the beach, reviewing this book has greatly expanded my knowledge about the needs of families where parents have a mental illness, and for that I am very grateful.

 

www.australianacademicpress.com.au




    RRP $44.95
    ISBN:
9781921513039
    AAP Item Number: 4-921513039
    284 pages softcover with Index
    First published 2008


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